Pediatric Brain Tumor Foundation
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of childhood brain tumors
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The Butterfly Fund

The Pediatric Brain Tumor Foundation’s Butterfly Fund provides emergency financial assistance to families of children in treatment at partnering medical facilities.

Childhood brain tumor treatment regimens are long and intense, requiring many parents to take unpaid leave from work to focus on their child and adding incredible levels of emotional stress on the entire family.

Out-of-pocket expenses, such as housing, transportation and groceries add up, and professional counseling, long-term rehabilitation, and other services often are not covered by insurance. These financial hardships pose serious barriers to patient care and can have devastasting effects on all family members.

Please read the following qualifications before applying for assistance.

Who qualifies for assistance from the Butterfly Fund?

Families whose children are in treatment for a pediatric brain or spinal cord tumor, and as a result, are experiencing financial hardship or need family counseling services. The child must be on active treatment and treated at one of the following partner institutions:

Alabama
Children's of Alabama, Birmingham

California
Children's Hospital Los Angeles
UCSF Benioff Children's Hospital, San Francisco

District of Columbia
Children’s National Medical Center, Washington

Florida
Arnold Palmer Hospital for Children, Orlando
University of Florida Health Shands Hospital, Gainesville

Georgia
Children’s Healthcare of Atlanta

Illinois
Ann & Robert H. Lurie Children's Hospital of Chicago

Massachusetts
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, Boston

Ohio
Cincinnati Children’s Hospital Medical Center, Cincinnati

Pennsylvania
Children’s Hospital of Philadelphia, Philadelphia

Tennessee
Monroe Carell Jr. Children’s Hospital at Vanderbilt, Nashville

Texas
Texas Children's Hospital, Houston

What types of expenses are covered by the Butterfly Fund?

The Butterfly Fund covers the following types of expenses:

  • Rent and mortgage payments, utility bills (electric, gas, and water), car loan and car insurance payments
  • Travel expenses associated with treatment away from home
  • Items not covered by insurance or other means such as special medications, long-term rehabilitation services, hearing aids, wigs and prosthetic devices, home health services, etc.
  • Professional counseling services that best support the family’s need: individual counseling, couples counseling, family counseling, and grief counseling
  • Funeral expenses

The following expenses are typically NOT covered: Bills owed prior to the child’s diagnosis, cable or internet bills, credit card and personal loan payments, auto repairs and medical bills of the patient or other family members.

Is there a limit to the amount of assistance provided?

Yes. The Butterfly Fund cannot solve a family’s financial problems. Rather, it is intended to help families get through an especially difficult time when their child is in treatment for a brain tumor. Further information about limitations can be discussed with your social worker or PBTF national family support staff.

How does a family apply for assistance?

The PBTF works directly with medical personnel at the treatment facilities listed above. For additional information and questions about the Butterfly Fund, please contact us at 800-253-6530 x306 or by email.