Support for Families

We're here to help you on your journey.

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From the moment of diagnosis through treatment and beyond, the Pediatric Brain Tumor Foundation community is here for your family every step of the way. Here you'll find resources and support for pediatric brain tumor patients and survivors, their parents, caregivers, and siblings.

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Survivorship Resource Guidebook

Finishing treatment for a pediatric brain tumor is a major milestone for families. It's also the start of a new journey with a new set of challenges. Our Survivorship Resource Guidebook is designed to help you navigate life after treatment ends.


If you’ve finished treatment for a childhood brain tumor – or if you’re the parent or caregiver of someone who has – the Pediatric Brain Tumor Foundation is here for you. We’ve collaborated with survivors, caregivers, and survivorship experts to put together a comprehensive guidebook with practical tools and resources for families navigating this time of transition.

Learn what questions to ask about long-term follow-up care, access templates for managing a survivor’s medical care, and read words of encouragement from other families like yours.

Fill out the following form to download the guidebook or request a hard copy. If you have questions or need additional support, email us anytime at [email protected].

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