Pediatric Brain Tumor Foundation
Working to eliminate the challenges
of childhood brain tumors
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Educational and Family Support Webinar Series

The Pediatric Brain Tumor Foundation’s webinar series seeks to alleviate the social isolation and emotional distress brain tumor families face by providing a nationwide, online community of support where families hear from experts in relevant fields and other families who have experiences similar to theirs.

These virtual events feature carefully chosen experts, provide opportunities for families to ask questions, and provide information and resources relevant to the brain tumor journey.

Addressing the Health-Related Quality of Life Challenges Families Face When Caring for Survivors of a Pediatric Brain Tumor


Join the Pediatric Brain Tumor Foundation on Thursday, June 23, at 1 p.m. ET/10 a.m. PT, for Addressing the Health-Related Quality of Life Challenges Families Face When Caring for Survivors of a Pediatric Brain Tumor. This webinar will feature a presentation by Dr. Janet Deatrick, Professor Emerita of Nursing, University of Pennsylvania. Dr. Deatrick’s current research focuses on young adult survivors of childhood brain tumors living at home with their parents or caregivers and the challenges that this poses for the family unit.


In this webinar, participants will be able to:

Describe the common challenges families face when caring for a survivor with ongoing medical needs 

Identify ways parents can become more effective managing the health-related challenges their survivors face 

Describe lessons learned from the survivor perspective about how their families can contribute to their quality of life 

Explore resources and tools to aid families in managing the long-term quality of life for the survivor 


Following the presentation, we will have a Q&A session with Dr. Deatrick. Attendees will have the opportunity to ask questions through a text chat. This webinar is free, but you must register below to attend. A recording will be made available after the event.

Click Here to Register

Previous Webinars:

To view recordings of past webinars, click on one of the links listed below:

**Important Information About the Webinar**

By registering, attendees agree that the content provided is for informational purposes only. The PBTF does not endorse any specific treatment methods, and attendees are advised to discuss the information presented with their healthcare provider. Attendees also authorize the Pediatric Brain Tumor Foundation to include their name as recorded during the event in informational and promotional activities as deemed appropriate by the PBTF.

 

If you have any questions, please contact us at 800-253-6530, x306 or familysupport@curethekids.org.


These virtual events are possible thanks to the generosity of our program sponsor Coverys.