Online Learning

The Pediatric Brain Tumor Foundation has produced a series of educational videos to help families better advocate for their child during treatment and beyond.

• The Family Support Learning Series features brief interviews with leading brain tumor experts. The clips explain complicated subject matter in simple terms.
• Recordings of our Parents & Survivors Conference sessions include presentations on a variety of subjects, from nutrition to genomic testing.

 Family Support Learning Series

• Advocating for Your Child (A): Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
• Advocating for Your Child (B): Dr. Michelle Monje, Stanford University Medical Center
• Clinical Trials (A): Dr. Mark Kieran, Dana-Farber Cancer Institute
• Clinical Trials (B): Dr. Mark Kieran, Dana-Farber Cancer Institute
• Clinical Trials (C): Dr. Mark Kieran, Dana-Farber Cancer Institute
• Current Treatments for Childhood Brain Tumors (A): Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
• Current Treatments for Childhood Brain Tumors (B): Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
• Etiology & Susceptibility (A): Dr. Jill Barnholtz-Sloan, Case Comprehensive Cancer Center
• Etiology & Susceptibility (B): Dr. Will Parsons, Texas Children’s Hospital
• Family & Siblings: Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
• The Importance of Getting a Second Opinion (A): Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
• The Importance of Getting a Second Opinion (B): Dr. Mark Kieran, Dana-Farber Cancer Institute
• Multidisciplinary Care: Dr. Roger Packer, Children’s National Health System
• Neurosurgery: Dr. Michael Taylor, Hospital for Sick Children
• Potential Late Effects of Treatment (A): Dr. Michelle Monje, Stanford University Medical Center
• Potential Late Effects of Treatment (B): Dr. Michelle Monje, Stanford University Medical Center
• Potential Late Effects of Treatment (C): Dr. Michelle Monje, Stanford University Medical Center
• Potential Late Effects of Treatment (D): Dr. Michelle Monje, Stanford University Medical Center
• The Role of Molecular Testing (A): Dr. Will Parsons, Texas Children’s Hospital
• The Role of Molecular Testing (B): Dr. Will Parsons, Texas Children’s Hospital
• Tumor Boards (A): Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
• Tumor Boards (B): Dr. Roger Packer, Children’s National Health System
• Tumor Classification & Cancer Registries (A): Dr. Jill Barnholtz-Sloan, Case Comprehensive Cancer Center
• Tumor Classification & Cancer Registries (B): Dr. Jill Barnholtz-Sloan, Case Comprehensive Cancer Center
• Tumor Genetics: Dr. Will Parsons, Texas Children’s Hospital

 2015 Parents & Survivors Conference Sessions
Supported by A Kids’ Brain Tumor Cure

• Keynote: Shellie and Annie Gofberg, parent and survivor
• Building Your Healthcare Team for Your Journey and Post-Treatment/Late and Long-Term Effects of Treatment: Dr. Natasha Smiley and Katie Valentino, MSN, Ann & Robert H. Lurie Children’s Hospital
• The Diagnosis & Treatment of Childhood Brain Tumors:
    o    Comprehensive Care for Children with Brain Tumors: Shannon Raber, MS, PNP, UCSF Benioff Children’s Hospital
    o    Genomics and the Diagnosis of Childhood Brain Tumors, Dr. Frank Lin, Texas Children’s Hospital
    o    New Therapeutic Approaches: Dr. Sabine Mueller, UCSF Benioff Children’s Hospital
    o    Radiation and Proton Beam Therapy: Dr. Stephanie Perkins, St. Louis Children’s Hospital
• Eating Well: Nutritional Guidance During and After Treatment: Carla Cartwright, RDN, St. Jude Children’s Research Hospital
• Overview of Childhood Brain Tumors: Carol Kruchko, Central Brain Tumor Registry of the U.S.
• Survivors’ Voices: Robert Gibbons, Scott Livingston, Casey Patton and Kevin Yndestad
• What’s Work Got to Do with It?: Rachel Becker, LMSW, Cancer and Careers, and Monica Bryant, Triage Center

2014 Parents & Survivors Conference Sessions
Cohosted with the Children’s Brain Tumor Foundation

• Keynote: Michelle Kees, parent of survivor
• Cognitive Changes and Educational Rights: Dr. Iris Paltin, Children’s Hospital of Philadelphia, and Lisa Kratze, special education advocate and parent of survivor
• Family Impact: Dr. Tara Brinkman, St. Jude Children’s Research Hospital
• Fertility & Nutrition: Dr. Laxmi Kondapalli, Colorado Center for Reproductive Medicine and Alanna Cabrero, MS, RN, Columbia University
• Medical Updates
    o    lntraoperative MRI: Dr. Jay Storm, Children’s Hospital of Philadelphila
    o    Late Effects of Treatments: Wendy Hobbie, Children’s Hospital of Philadelphia
    o    Pediatric Brain Tumors and the Genomics Revolution: Dr. Peter Phillips, Children’s Hospital of Philadelphia
    o    Proton Beam Radiation, Dr. Peter Phillips, Children’s Hospital of Philadelphia
• What’s Next? Hearing the Voices of Survivors: David Cain, Morgan Coutts, Jamalia Hanson and Nicole Marley