Pediatric Brain Tumor Foundation
Working to eliminate the challenges
of childhood brain tumors
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Starfolio Resource Notebook

When your child is diagnosed with a brain tumor, you’ll have lots of questions. Answers may be hard to find. The Starfolio Resource Notebook is designed with you in mind and provides information and practical resources to help you navigate these challenging days.

In the Starfolio, you’ll find:

  • A wealth of reliable information on childhood brain tumors
  • Tools to help you communicate with your healthcare team
  • Templates to help you manage and organize your child's care
  • Resources to help you as your child returns to school
  • Information about how to navigate your journey at each stage
  • Words of encouragement from other families who have walked before you

How to get your free copy of the Starfolio Resource Notebook:

  • Get a digital copy of the English Starfolio immediately by downloading it here.
  • Get a digital copy of the Spanish Starfolio immediately by downloading it here.
  • Complete a family profile form to request a printed copy in a zip-up binder.
  • The Starfolio’s forms and templates in English are also available for download and printing here.
  • The Starfolio’s forms and templates in Spanish are also available for download and printing here.

Cómo obtener una copia gratuita del Cuaderno de recursos de Starfolio:

  • Obtenga una copia digital de inmediato descargándola aquí.
  • Complete un formulario de perfil familiar para solicitar una copia impresa en una carpeta con cremallera.
  • Los formularios y plantillas de Starfolio también están disponibles para descargar e imprimir aquí.

Children with brain tumors are Stars to the PBTF, so we’ve named this resource the Starfolio in their honor. One of those Stars is Thea Danze. Her mom, Trisha, started the Pennsylvania-based nonprofit Thea’s Star of Hope, which helped fund the Starfolio.

If we can help you in any other way or if you would like us to mail you a printed copy of the Starfolio, please contact us at Additional information about the Pediatric Brain Tumor Foundation's family support programs can be found at

The Starfolio resource notebook is possible thanks to the generosity of our project funder Coverys and Program Partners Thea’s Star of Hope and the American Legion Child Welfare Foundation.