Virtual Townhall for Families: Managing Stress in Times that Retraumatize
When a child is diagnosed with a brain tumor or other form of cancer, the immense uncertainty and serious challenges surrounding treatment can have a lasting effect on every member of the family. As families navigate the continually evolving situation with COVID-19, their feelings during this time may be heightened by the stress and trauma they experienced following their child’s diagnosis.
To help parents and caregivers take care of their families throughout and after COVID-19, the Pediatric Brain Tumor Foundation will host Managing Stress in Times that Retraumatize, a free, virtual townhall on Tuesday, April 14.
The PBTF will be joined by St. Jude Children's Research Hospital’s Dr. Niki Jurbergs, Clinical Director, Department of Psychology, and Dr. Tara Brinkman, Associate Member, Department of Epidemiology/Cancer Control, who will discuss navigating the post-traumatic stress caused by a pediatric brain tumor diagnosis and what happens when that stress meets the stress caused by COVID-19. Although the townhall has been designed for pediatric brain tumor families, families impacted by other forms of childhood cancer are also invited to attend.
“During these challenging days, we want to care for families in meaningful ways. Families tell us that feelings of uncertainty surrounding COVID-19 can add additional stress to their already complex experiences parenting a child with a brain tumor. The Pediatric Brain Tumor Foundation’s first virtual townhall features experts on the emotional impact a pediatric cancer diagnosis has on families and will provides opportunities for families to ask questions about their concerns as they navigate the days ahead,” says Kathy Riley, MPH, CHES, Vice President of Family Support, PBTF.
Families are encouraged to register here. The townhall will be recorded, and attendees will have the opportunity to ask questions through a text chat during the event.
If you or a family you know is in need of support, please reach out to our national family support team or your region’s family support contact and regional director listed below. Additional resources for pediatric brain tumor families can be found at our COVID-19 Family Resource Center, which includes answers to key questions, ways to manage your family’s emotional wellbeing, and resources to help you during this time.
National Family Support Contacts:
- Kathy Riley, Vice President of Family Support: firstname.lastname@example.org
- Keila Levis Aguilar, Manager of Family Support: 800-253-6530, x306 and email@example.com
Regional Family Support Contacts and Directors:
- Central Region: Tammy Bristol and Bob McNamara
- Northeast Region: Icandace Woods and Kimberly Roy-Canning
- Southeast Region: Heather Held and Tammy Bates
- West Region: Cynthia Rodriguez and Valerie Loduem
Along with funding research for cures that will lead to a better quality of life for kids with brain tumors, the PBTF is committed to equipping and empowering family members by providing meaningful resources and support. Find out more about our family support programs and resources here.