Pediatric Brain Tumor Foundation’s Statement of Solidarity and Care
The recent deaths of Breonna Taylor, Ahmaud Arbery, and George Floyd, as well as the ongoing discrimination and injustice in our country, are tragic. They underscore the reality that we -- as individuals, organizations, and a nation -- must collectively do better at ensuring diversity, equity, and inclusion for People of Color and underserved members of society.
More than 28,000 of our nation’s children and teens are currently living with a brain tumor diagnosis, and this year, an estimated 4,700 children under the age of 19 will be newly diagnosed with a primary brain or other CNS tumor. This devastating disease touches families of every race, culture, and background, and the Pediatric Brain Tumor Foundation community has long been committed to care for children diagnosed with a brain tumor, respecting the diversity of those we serve and responding to the needs of our communities through our programs and policies.
Although pediatric brain tumors do not discriminate, this disease does not affect everyone equally. In our quest to create truly equitable patient and family support, we cannot ignore how racial, social, and economic disparities impact pediatric brain tumor families.
Children deserve the same opportunity to live a long, happy, and healthy life, and no child should be disadvantaged in their brain tumor journey because of race, economic means, where they live, religion, age, gender, gender identity or expression, or sexual orientation. Tragically, though, these and other factors result in many children not having access to the healthcare and resources they need.
PBTF acknowledges that we must foster a welcoming, safe, and inclusive community for families impacted by a child’s brain tumor diagnosis, our supporters, our staff, and our board. We continue to be fully committed to fighting for equity in how children with brain tumors are treated and how families are cared for.
If your family is facing or has faced a child’s brain tumor diagnosis, know that you are valued and supported at PBTF. We are here for you from the moment of diagnosis, through treatment, and beyond, and your battle guides us in our decisions – from the family support we provide to the research we fund to the issues we advocate for. If you need support at any time, do not hesitate to contact us at 800-253-6530, x306 or firstname.lastname@example.org.
You are not alone on your journey. We see you and we hear you.
Together to Care, Cure, and Thrive,
Pediatric Brain Tumor Foundation