PBTF Launches COVID-19 Resource Center for Families of Children with Brain Tumors
IMPORTANT: If you think your child or a member of your family has been exposed to COVID-19 (coronavirus) and develops a fever and symptoms, such as a cough or difficulty breathing, call your healthcare provider for medical advice. They will work with state health departments and local health authorities to determine if you should be tested. Be sure to follow their guidance on when to come into the office or hospital and when it’s safer to stay home.
A child’s brain tumor diagnosis can be an incredibly isolating and complicated experience, one that has now been made even more isolating and complicated by the disruptions caused by COVID-19.
In response to the challenges families may face during COVID-19, the Pediatric Brain Tumor Foundation has launched a COVID-19 Family Resource Center. The Resource Center has been created with families in mind using information from trusted sources, such as the public health experts at the Centers for Disease Control and Prevention (CDC) and the World Health Organization (WHO).
The links below represent just some of the information that can help families of children with brain tumors:
- Common Questions about COVID-19 and Pediatric Brain Tumor Patients
- Ways to Manage Your Family’s Emotional Well-being During COVID-19
- Resources to Help Children and Families During COVID-19
No matter where a family lives and what stage of the pediatric brain tumor journey they are on, the Pediatric Brain Tumor Foundation is here to help with meaningful support, connection and community. If you or a family you know is need of support, please reach out to our national family support team or your region’s family support contact and regional director listed below:
National Family Support Contacts:
- Kathy Riley, Vice President of Family Support: firstname.lastname@example.org
- Keila Levis Aguilar, Manager of Family Support: 800-253-6530, x306 and email@example.com.
Regional Family Support Contacts and Directors:
- Central Region: Tammy Bristol and Bob McNamara
- Northeast Region: Icandace Woods and Kimberly Roy-Canning
- Southeast Region: Heather Held and Tammy Bates
- West Region: Cynthia Rodriguez and Valerie Loduem
“Families tell us that feelings of uncertainty surrounding COVID-19 can add additional stress to their already complex experiences parenting a child with a brain tumor. We want families to have a place to turn for reliable information and resources so that they are equipped to care for their children and have informed conversations throughout the days ahead. The COVID-19 Family Resource Center is one of the practical ways we are expressing our care for families so that they feel less alone in their journey,” says Kathy Riley, MPH, CHES, Vice President of Family Support, PBTF.
Along with funding research for cures that will lead to a better quality of life for kids with brain tumors, the PBTF is committed to equipping and empowering family members by providing meaningful resources and support. Find out more about our family support programs and resources here.