Pediatric Brain Tumor Foundation
Working to eliminate the challenges
of childhood brain tumors
Please leave this field empty

Cure the kids! Give Now

font size AAA

PBTF Joins Alliance for Childhood Cancer in Thanking Congress for Support of Childhood Cancer STAR Act and Childhood Cancer Data Initiative

12/02/20

The U.S. Senate's Labor, Health & Human Services, Education and Related Agencies Subcommittee has released the draft of their Fiscal Year 2021 bill, including full funding for the Childhood Cancer STAR Act and Childhood Cancer Data Initiative. This latest draft, coupled with the House’s passing of legislation earlier this summer to fully fund both programs, positions the childhood cancer community to see these resources included in a final FY21 appropriations bill.

The Pediatric Brain Tumor Foundation joins other members of the Alliance for Childhood Cancer in thanking the House and Senate for their strong support of childhood cancer research funding, especially funding for the STAR Act. A letter was recently released by the Alliance for Childhood Cancer and co-signed by PBTF to the House and Senate Subcommittees’ Chairwoman Rosa DeLauro, Chairman Roy Blunt, and Ranking Members Tom Cole and Patty Murray.

This funding bill is crucial to developing better treatments for children battling brain tumors. Although significant advances have been made for some forms of childhood cancer, pediatric brain tumors – the deadliest form of childhood cancer – are not currently one of them.

Our children deserve a cure, and it is the PBTF’s mission to accelerate the number of targeted therapies for children battling brain tumors today, while equipping families with the educational resources, financial relief and emotional support they need to navigate their child’s journey.

PBTF and the Alliance for Childhood Cancer urge appropriators to finalize a funding agreement that includes:

  • $30 million to fund the initiatives set forth in the Childhood Cancer STAR Act, including $2 million to be awarded to State cancer registries to enhance and expand infrastructure to track cancer in children, adolescents, and young adults.
  • $50 million to continue the White House’s Childhood Cancer Data Initiative, which will establish more efficient ways to share and use childhood cancer data.
The childhood cancer community's letter can be read and downloaded here.

About the Pediatric Brain Tumor Foundation

Every day, 13 children and teens are diagnosed with a brain tumor, the deadliest form of childhood cancer. Every day after, they are in a fight for their life. It is a fight the Pediatric Brain Tumor Foundation is here to help families win. A leader in the brain tumor and childhood cancer communities, PBTF’s mission of Care. Cure. Thrive. reflects its commitment to curing all pediatric brain tumors and transforming how children and their families are cared for. Since 1991, PBTF has provided strategic leadership and funding to accelerate the number of targeted therapies for children battling brain tumors today, while equipping families with the educational resources, financial relief and emotional support they need to navigate their child’s journey. A world without childhood brain tumors is possible when we stand together to effect real, meaningful change. Learn more at www.curethekids.org.