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PBTF and Society for NeuroOncology Webinar Explores Impact of COVID-19 on Pediatric Brain Tumor Research and Treatment

09/18/20

Children battling brain tumors have had to wait far too long for the scientific breakthroughs other pediatric cancer patients have experienced. An often-cited barrier to progress is the lack of large-scale funding for pediatric brain tumor-specific research, a need the Pediatric Brain Tumor Foundation has led the way in addressing since 1991.

The COVID-19 pandemic has put this progress even more at risk, threatening researchers' access to critical resources and changing the way patients receive medical care. To help answer families’ and healthcare providers’ questions about the current state of research and patient care, the Pediatric Brain Tumor Foundation and Society for NeuroOncology are co-hosting The Impact of COVID-19 on Pediatric Brain Tumor Research and Treatment.  

This free webinar will take place on Sept. 30 at noon ET/9 a.m. PT. Patient families, pediatric brain tumor survivors, healthcare providers, and other members of the childhood cancer and brain tumor communities are encouraged to register here. The webinar will be recorded, and attendees will have the opportunity to ask questions through a Q&A chat during the event. 

"Nonprofits like the Pediatric Brain Tumor Foundation and our community of families and advocates play a critical role in ensuring research keeps moving forward. We are honored to partner with the Society for NeuroOncology to call attention to the challenges many researchers and patient families are facing because of COVID-19," says Courtney Davies, PBTF President and CEO. 

Dr. Annie Huang, The Hospital for Sick Children, Toronto, and Kathy Riley, PBTF's Vice President of Family Support, will moderate a panel discussion. Speakers Include: 

  • Dr. James T. Rutka, Neurosurgeon, The Hospital for Sick Children, Toronto  
  • Dr. Maryam Fouladi, Co-Executive Director, Pediatric Neuro-Oncology Program, Nationwide Children's Hospital, Ohio 
  • Dr. Eric Bouffet, Director, Pediatric Brain Tumor Program, The Hospital for Sick Children, Toronto 
  • Dr. Duane Mitchell, Director of the UF Brain Tumor Immunotherapy Program, University of Florida 
  • Dr. Laura Donovan, Lecturer/Assistant Professor of NeuroOncology, University College, London 
  • Camille Conner, Parent of a Brain Tumor Survivor 

This panel discussion, part of PBTF's webinar series, follows the recent announcement of two new research grants to advance the delivery and impact of targeted drug treatments for pediatric brain cancer. Totaling over half a million dollars through the PLGA Fund at PBTF, these grants include a Phase III clinical trial and a new research project that will help scientists figure out optimal drug dosing strategies for pediatric brain tumor patients. 

More information about PBTF's latest research funding can be found here, and additional resources for pediatric brain tumor families can be found in our COVID-19 Family Resource Center. If you or a family you know need assistance, please contact our national family support team today at 800-253-6530, x306 and familysupport@curethekids.org

About the Pediatric Brain Tumor Foundation
Every day, 13 children and teens are diagnosed with a brain tumor, the deadliest childhood cancer. Every day after, they are in a fight for their life. It is a fight the Pediatric Brain Tumor Foundation is here to help families win. As the world’s leading nonprofit dedicated to kids with brain tumors, PBTF is transforming how childhood brain tumors are treated and how children, teens, and their families are cared for. Through partnerships with leading medical institutions, organizations, families, and individuals, we have funded $46 million in scientific discovery and connect thousands of families each year with patient and family education, financial relief, and a thriving community of support. A world without childhood brain tumors is possible when we stand together to effect real, meaningful change. Join us in our mission to Care. Cure. Thrive. at www.curethekids.org.