Childhood Cancer Awareness Month: Shining a Light on Pediatric Brain Tumor Families' Impact
Each child’s brain tumor journey is unique, from diagnosis to treatment and beyond. However, while families’ experiences can vary based on their child’s tumor type, age and treatment, there is one undeniable similarity: life is never the same after diagnosis.
A child’s brain tumor diagnosis impacts every member of the family and can affect families for many years to come. The PBTF’s recent Community Health Needs Assessment uncovered a wide range of challenges that families and survivors face long after treatment -- including emotional distress, financial hardships, a lack of available resources to help advocate for their family, and difficulty re-entering school and professional environments.
In the face of these challenges, these children and their families choose to rise up. By raising awareness. By supporting other families on their journey. By fundraising for critical research and family support programs.
“So many people reached out to us and supported us during our time of need,” says Nicole Spadaro about her daughter Anabella’s journey. “It is important for us to pay it forward and to give back to others during their difficult time.”
Every year, 8-year-old Anabella raises funds for children who were sick like her.
“We begin by doing a 50/50 raffle with friends and family. Then we go to our school and do a ‘coins for cancer’ fundraiser,” explains Nicole. “Students bring in loose change and dump it in the large jug. Bella assists the students and LOVES watching the jug fill up. This year she encouraged me to make tee shirts to sell for more money. I own a small printing business and thought this idea was great -- all proceeds went to the fund.”
Starting this Childhood Cancer Awareness Month, we’re shining a light on the amazing ways pediatric brain tumor families are giving back and making an impact in their communities. Their stories shine brightly, showing us what it truly means when we say "Together to Care. Cure. Thrive."
You can join Anabella and others in making an impact this September:
- Donate now to fuel more cures and better care.
- Spread the word by using the resources in our social media toolkit with the hashtags #CareCureThrive and #CCAM
- And if you are a pediatric brain tumor family, share your story via our new Starlights submission form.
In the coming weeks, we’ll share more stories of families' inspiring journeys and ways you can get involved so be sure to follow us on Facebook for updates.
Together, we will care for families along their journey, cure all childhood brain tumors and help survivors and families thrive.