Pediatric Brain Tumor Foundation
Working to eliminate the challenges
of childhood brain tumors
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Cure the kids! Give Now

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May 2014


Raise awareness and hope in May


Watch and share our new mission video!

Every day in the United States, close to 13 more kids are diagnosed with one of the deadliest forms of childhood cancer. Every day in May, we will tell their stories.

Join us on social media during Brain Tumor Awareness Month to learn more about children, parents, caregivers, doctors and researchers who are meeting the challenges of childhood brain tumors.

This issue of eCure Matters features stories of two Stars, Grayson and Hunter.

We invite you to share these stories with your network to raise awareness and hope. And if you have your own story to tell, please let us know.

 


Survivor dreams about his future


Grayson Anderson, 7, is a two-time brain tumor survivor.

 

We’re making it easier than ever to host your own fundraiser to help kids with brain tumors!

Grayson Anderson wants to be a “brain doctor” when he grows up, says his mother, Paula.

The 7-year-old from Alabama already knows what it’s like to work with doctors and nurses in a hospital, thanks to his experience with a juvenile pilocytic astrocytoma.

After being diagnosed at age 2, Grayson went through brain surgery and therapy. He received his first clean MRI scan about two years ago and continues to take anti-seizure medication.

Now in first grade, Grayson enjoys sports and playing with his three brothers. One day he hopes to play football for the University of Alabama.

“Until this happened to him, I had no idea,” Paula says. “Now, I try to raise as much awareness as I can.” She even has a gray ribbon tattooed on her wrist as a permanent reminder of the cause.

 


Lend a hand for children like Hunter


Hunter Duke’s family uses the PBTF’s online fundraising tool to raise funds for a cure.

Parents Jennifer and Brian Duke use the PBTF’s online fundraising tool, My Fundraiser, to help raise funds for children fighting brain tumors. Here, they speak to the importance of fundraising for a cure:

Nearly 4,700 children in the United States are diagnosed with a brain tumor every day. Our daughter, Hunter, was one of those children. Hunter was diagnosed with an anaplastic medulloblastoma at 5 years old. She was a fighter. She lived in the hospital for three months and endured brain surgery and noxious chemotherapy. But even on her most difficult days, Hunter still wanted to make others smile. Anyone that came through Hunter’s hospital room received a sticker from our little girl. Despite her very best efforts, the disease claimed Hunter’s life just before she was about to start kindergarten.

Today, we are doing everything we can to help the Pediatric Brain Tumor Foundation fund potentially lifesaving research. Brain tumors are one of the deadliest forms of childhood cancer and research is grossly underfunded. Children like Hunter depend on the foundation to help find a cure. Proceeds from our organization, Hunter’s Helping Hands, go directly to the PBTF.

It is our hope to never see another child suffer the pain that Hunter experienced. Please help us cure the kids.

For Hunter and for the kids,

Jennifer and Brian Duke


Get informed about pediatric brain tumors


The PBTF helps you stay informed about the latest statistics about childhood brain tumors.

The PBTF makes it easy to stay up to date on the latest facts and figures about childhood brain tumors. Our fact sheet compiles data from the Central Brain Tumor Registry of the United States and the World Health Organization in a single document.

“Every newly diagnosed case of a pediatric brain tumor is a newly afflicted life of a child or adolescent – and that of his or her family and caregivers, so the PBTF keeps up with the number of newly diagnosed cases reported by cancer registries across the country on a yearly basis,” says Joanne Salcido, vice president of research and family support.

“The very impersonal numbers do not tell the full story. However, they do reflect the beginnings of very personal stories of healing, hope, suffering, and far too often, of profound grief and loss. The numbers also partly define the scope of our mission. So we take them to heart and keep them top of mind.”